Our activities

Activities in year 2012:


Past activities in year 2011
:

  • Press conference on Rare diseases day on February 28th
  • Two-day meeting of experts and patients in Moravske spa, June 18th and 19th.
  • A conference on European Week Awareness of Cystic Fibrosis (November 21th to 27th)
  • Issuing publications (Child With Cystic Fibrosis in School and Lung Transplantation)


Past activities in year 2010:

  • Press conference on Rare diseases day on February 28th
  • Half day walking tour in Kočevska reka on May 15th
  • Two days event (lectures about CF, workshops) in Terme Lendava, Slovenia on June 5th and 6th
  • One day event (lectures) at Pediatric Clinic in Ljubljana on September 11th 
  • A conference on European Week Awareness of Cystic Fibrosis (November 15th to 20th)
  • Issuing publications (Proper and Safe Use of Medicines by Patients With Cystic Fibrosis)
     

Past activities in year 2009:
(The Association was was a part of Pulmonary and Allergic Patients Association of Slovenia till the end of 2009).

  • One day event (lectures about CF) at Golnik Hospital
  • Two days event (lectures about CF) in Terme Olimia in Podčetrtek
  • A conference on European Week Awareness of Cystic Fibrosis (November 9th to 15th)
  • Issuing publications (First Steps with Cystic Fibrosis and Facing with Cystic Fibrosis)