Rare diseases in Slovenia

There are more than 4500 different rare diseases in Europe. Most of these hereditary diseases have also patients in Slovenia. The funding for the diagnosis and treatment of these diseases are (often) not regulated. Therefore, patients and a profession are trying to establish a special fund for those patients who suffer from any of the rare diseases in Slovenia.

On 26th of February 2010 we organized a press conference to raise society’s awareness, to inform the general public on rare diseases and to improve cooperation between patients and medical profession for better quality of life of patients on Rare disease Day (28th February).

Rare Diseases Day 2010, 2011 in Slovene media:

For more information about rare diseases in Slovenia please contact us at: info (at) drustvocf.com.

More information about rare diseases and Rare Disease Day on Wikipedia (in English).